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Why this, why now

There’s so little information out there about brain tumours and how to live with them despite 1 in 69 UK males and 1 in 65 UK females being diagnosed with them. 11,000 people are told every year that they have a primary brain tumour.

That’s a lot of people.

So, how should you live with a brain tumour? I don’t know. I have my experiences as I try to navigate this journey and you’re welcome to join me. It won’t be all about brain tumours, but life generally.

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Who am I?

I was diagnosed with a meningioma earlier this year.

Hold on, let me put it in context for you.

Remember the really, really hot few weeks in 2022? Well, I woke up one morning and my face was bruised on the side. It was the weekend so I called 111 to avoid A&E and ended seeing a doctor at a local GP. He said I must’ve passed out at work and hit my head.

I said I didn’t remember doing that but he was quite insistent. Said keep an eye on it as my face was quite swollen. I did, and the swelling didn’t go down. It was hard. He said I’d hit the bone.

December 2022, got covid and my face turned sore. I called the GP, she ordered a scan and a few weeks later I got the call. She confirmed I had a brain tumour.

Join me on the journey

I’ll be writing about what happens next. My aim is to write weekly about things that have happened, hopes, fears and successes. Also, probably a lot of musing on life. Join me and tell me your brain tumour story.

Photo by Milad Fakurian on Unsplash

Read on, let me know what you want to hear about and I’ll do my best to share what I know.

Claire x

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